|
|
eSAY National Learning Disability and Autistic Spectrum Disorder Dataset V4.0 Map |
Section List / Section 3 - Current Services and Opportunities / Item 25 - Level of unpaid support
Definition : Unpaid support, care and supervision provided without payment by a relative or friend to someone in need because of illness, disability or frailty. This item records that support (also referred to as ‘natural support’).
Due to the potential of this item to cause offence if pursued too rigorously, it should be approached with sensitivity. It should be clear that this will be used to show the contribution that unpaid support makes. People are not being asked to formally account for the hours per week that they care for a person.
Purpose : Could be seen as part of “Current care and supports”, but is listed separately to reflect the importance of including information regarding unpaid care alongside more ‘formal’ service provision.
‘Natural’ networks form the foundation for people who require support in the community. It is important locally and nationally to be aware of the level and nature of informal care and to ensure that formal services assist and strengthen the person’s natural support.
Recording Guidance : All relevant items should be selected.
Codes : eSAY Project
Code |
Value/Definition |
00 |
None |
01 |
Immediate family i.e. Parent, brother or sister. |
02 |
Other Relative Any relative who is not a parent or sibling. |
03 |
Friend/neighbour |
04 |
Befriender |
05 |
Citizen advocate |
98 |
Other |
99 |
Not known |
Level of unpaid support: provision frequency
One of the codes below should be attached to each recorded provider of support.
Code |
Value/Definition |
00 |
None |
01 |
1 – 9 hours per week |
02 |
10 – 19 hours per week |
03 |
20 – 29 hours per week |
04 |
30 – 39 hours per week |
05 |
40+ hours per week |
99 |
Not known |